Lighthouse Lymphedema Network
The LLN Store is now open. Our first two items are ready for sale and you won't want to miss them!
Click on each book below to purchase
Heather Ferguson tells her story
A video message from our Director, Joan White
Please Donate!
This time of year we pause to thank our many contributors for their generosity last year and in years past. These are difficult times for all of us. We understand in these difficult times we all must regroup and reassess how we spend our valuable resources. We offer you this. We give all we can to those in need and to support our organization. We have no paid staff. We are all volunteers. We manage your money as carefully as if it were our own. We need donations to continue to provide education, services, and garments to those in need. Without you, we cannot do our mission. Please consider adding us to your list of charitable organizations worthy of your donation. We have made giving easier this year. You can now donate safely and securely right here on our website with your credit or debit card. Click here to donate. We cannot thank you enough for your donation. If you have any questions for us, please fill out the Contact Us form on this site. For more information on what we do and how we do it please visit this page.
Exciting News!
A national lymphedema bill has been introduced by Congressman Larry Kissell of North Carolina in the House of Representatives as H.R. 2449, the “Lymphedema Diagnosis and Treatment Cost Saving Act of 2011”. The bill has the goal of providing insurance coverage for lymphedema patients and compression supplies in order to reduce total healthcare costs through avoidance of periodic infections, pain and disabilities resulting from this medical condition. To view the bill go here. For in depth information click on the logo to the left. Highlights of 2010
The 13th State of Georgia Lymphedema Education & Awareness Conference was held, Saturday, October 16, 2010, at DeKalb Medical Auditorium, Decatur, GA 30033. This is an annual educational and awareness conference for patients, caregivers, family members, and medical professionals. 
We sincerely thank our speakers:
- Robert Weiss
- DeCourcy Squire, PT, CLT-LANA
- Heather Ferguson
- Connie D. Hill, PhD
- Michael Bernas, MS
- Shelley Smith DiCecco, PT, CSLT
- Deb Cozzone
- Jane Thiery, PT, CLT
- Samantha Cannon, MSOT/L, CLT
- Moderator, Elaine Gunter, MT (ASCP)
- The Bandages and Garment Fund, this year alone, has helped over 30 patients. To date, the fund has assisted over 100 patients.
- Fund Raising has included two garage sales, fencing tournament in Denver, CO., silent auction and the annual Piedmont Hospital Craft Bazaar.
- The LLN published 3 newsletters. Special thanks to Elaine Gunter, our editor, and Gary Gunter her very valuable assistant.
- We updated our LLN lymphedema educational brochure and gave it a new title, “Do You Have Swelling That Does Not Go Away”. If your business or clinic needs brochures, please email joanwhite59@gmail.com
- March 24, 2010 Lymphedema Education Day at the Georgia State Legislature.
- Participation in the Gloria Watts-Cox Foundation Walk for Lymphedema held in June, The Winship Cancer Institute Celebration of Living, and It’s the Journey (2-Day Walk) EXPO.
- Our website has a new look – www.lighthouselymphedema.org Clint Labarthe is the creative genius who spent most of the summer working on the site. We applaud Clint for his dedication, determination and imagination.
What to expect in 2011:
- Publication of our long anticipated book.
- Publication of our second cookbook with more on healthy eating.
- Expansion of the LLN website to include more information on lymphatic diseases.
- 14th State of Georgia Lymphedema Education & Awareness Conference to include speakers presenting on genetics, research, legislation, and always our networking sessions.
TEAM AWARD presented at the 13th State of Georgia Lymphedema Education & Awareness Conference.
Lighthouse Lymphedema Network Director, Joan White, presented the “Team Award” to the members of the LLN Board of Directors: Larry Ashmore, Dolores Bradley, Samantha Cannon, Deb Cozzone, Vicky Day, Shelley Smith DiCecco, Elaine Gunter, Gary Gunter, Linda Harman, Laura Hoffman, Gwen Forbes-Kirby, Stephanie Kirkpatrick, Jennifer Kitt, Clint Labarthe, Debbie Labarthe, Vera Newman, Charles “Pat” O’Connor, Katie Russo, Cole Sanders, Stacy Saraydar, Janie Smith, Lisa Sollenberger, Decourcy Squire, Sandi Stephens, Beverly Thompson, Shirley Tucker.
“In recognition of your compassion, dedication, and service to the Lighthouse Lymphedema Network through your unselfish volunteer work to promote, educate, and create awareness for all lymphatic diseases. We celebrate you today! Honor you! Thank you!”
Our sincere thanks to the following businesses for their financial support of the 13th State of Georgia
Lymphedema Education & Awareness Conference:
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Special thanks to:
- MEDI, USA for the sponsorship of Robert Weiss and Heather Ferguson.
- BSN MEDICAL – JOBST for the sponsorship of the Continental Breakfast.
- SIGVARIS, INC. for the sponsorship of Michael Bernas, MS
- DEKALB MEDICAL for the donation of the auditorium and parking for the conference.
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SOLARIS, INC. for the donation of $3,000.00 in retail products to our Bandages and Garment Fund through the bean bag toss game
AROUND THE CLOCK FASHION SHOW
Education and demonstration of compression options and adapted equipment for management of lymphedema. Our models seemed to get into the spirit of the show with their small “antics” which made us laugh.
Thank you models:
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Riffany Alberson Larry Ashmore Samantha Cannon Bernice Cohen David Cohen Deb Cozzone |
Courtney Day Vicky Day Shelley Smith DiCecco Gwen Forbes-Kirby Jan Freund Devin Goolsby |
Elaine Gunter Gary Gunter Clint Labarthe Debbie Labarthe Jonathan Maiden Trinity Maiden |
Vera Newman DeCourcy Squire Angie Staple Beverly Thompson Doug White Joan White |
Our Book
We are working diligently on our new book which will feature many stories about lymphdema patients just like you telling their personal stories from their hearts. Look for information about it soon on this site.
Legislation
New proposed legislation has been given a bill number and was introduced by Congressman Larry Kissell of North Carolina in the House of Representatives as H.R. 4662, the "Lymphedema Diagnosis and Treatment Cost Saving Act of 2010" .
Forums
While we may have a forum on this site for the exchange of information about lymphedema in the future, we do have a presence on facebook for that purpose today. If you wish to dialog with others around and across the globe, check us out on facebook.
Fund Raising
We have had successful fund-raising programs again this year thanks to all of you. Our next fund-raising event will be the annual Craft Bazaar. Watch our Announcements area at the top of this page for details or click on Event Listings under News & Events on the Main Menu.
