Our Mission
The Lighthouse Lymphedema Network is a non-profit IRS Section 501(C)(3) organization of individuals who are lymphedema patients, or who have an interest in lymphedema. Our goal is to educate, promote awareness, and provide support for lymphedema patients, the medical community, family and caregivers, insurance companies, the general public, and lymphedema support groups.
Who are we?
The Lighthouse Lymphedema Network, we call ourselves the LLN, is dedicated to educating and creating awareness about lymphedema and related disorders. The LLN annually sponsors a medical conference including patients, caregivers, family members, and medical professionals. Our Bandages and Garment Fund helps those needy patients in Georgia whose insurance, Medicare or Medicaid will not cover garments or other devices. The LLN publishes a quarterly newsletter. Other materials available include our brochure. Through our website, we hope to provide information both locally and nationally. We have a strong board of directors of 30 volunteers who work tirelessly on various committees, fund raising projects, representing the LLN at health fairs and conferences throughout the year.
We do not ask you to "join" our organization in order to receive our newsletter. We diseminate our information free to you but at a cost to us. We do encourage everyone, whether you are an infrequent visitor to our site or one who has been with us for many years, to consider making a tax-deductible donation to us and our cause. We have no paid staff but we do have expenses. When you help us, we can help many people.
A video message from our Director, Joan White
Our next next annual Conference is only weeks away
Read the the summary information below, download the Conference brochure, and register soon. Seating is limited! Reserve your seat(s) today and benefit from early registration. We try very hard to limit the cost for you to attend. Our registration cost for attendees and vendors fund the event entirely.
PATIENTS are invited to the State of Georgia Annual Lymphedema Education & Awareness Conference. As with most medical conferences, patients are usually not allowed to attend. This is why the Lighthouse Lymphedema Network originally started these conferences. We wanted to give lymphedema patients the opportunity to learn "first hand" about their disease, see the latest in products available, and to rub elbows with other patients and medical professionals.
CAREGIVERS you are important. You are important to the quality of life to your family member or friend. Learn from others how they handle certain situations.
PARENTS, nothing is more devastating than to have your child born with lymphedema or other related disease. First you feel so alone and frustrated. Come and talk to other parents and share your journey.
MEDICAL PROFESSIONALS, your expertise is sincerely appreciated and welcomed. To put all of you in one room and interact, is beneficial to all. We learn from each other.
LYMPHEDEMA DIAGNOSIS AND TREATMENT COST SAVING ACT H.R. 4662 has been introduced in the U. S. House of Representatives. Read about it here and get a certified copy of the bill.
Our Book
We are working diligently on our new book which will feature many stories about lymphdema patients just like you telling their personal stories from their hearts. Look for information about it soon on this site.
Legislation
New proposed legislation has been given a bill number and was introduced by Congressman Larry Kissell of North Carolina in the House of Representatives as H.R. 4662, the "Lymphedema Diagnosis and Treatment Cost Saving Act of 2010.
Forums
While we may have a forum on this site for the exchange of information about lymphedema in the future, we do have a presence on facebook for that purpose today. If you wish to dialog with others around and across the globe, check us out on facebook.
We have had successful fund-raising programs again this year thanks to all of you. Our next fund-raising event will be the annual Craft Bazaar. Watch our Announcements area at the top of this page for details or click on Event Listings under News & Events on the Main Menu. Fund Raising
