This web site is owned and maintained by the Lighthouse Lymphedema Support Group. We conduct business under the name Lighthouse Lymphedema Network, a not for profit IRS 501(C)(3) organization .  Please note that this policy is subject to change.

Our Commitment to Privacy

Lighthouse Lymphedema Network (LLN) fully respects the privacy of its online visitors. To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we have put in place appropriate physical, electronic, and managerial procedures to safeguard and secure the information we collect onlineWe do not collect personally identifiable information from a visitor unless they provide it to us voluntarily and knowingly. We do not access a visitor’s computer for any reason particularly for the purpose of obtaining personal, identifiable information of any kind.  We do not require you to provide any information to us in order to view our site. Only such information that would identify the user is gathered when the visitor voluntarily submits the information through one of our online forms (e.g. Donate, Volunteer, Contact Us, Newsletter Sign-Up, Registration, and others). Generally this information includes:

  • Name
  • Street Address
  • E-mail address
  • Credit/Debit Card Information (if used)
  • Home phone number (optional)
  • Cell phone number (optional)
  • Name of person honored (optional)
  • Name of person memorialized (optional)
  • Address for acknowledgement (optional)


The information is used solely by the Lighthouse Lymphedema Network for internal purposes, and it is neither sold to nor shared with a third party. We use the information you provide about yourself when conducting a transaction to complete that transaction only. We use return e-mail addresses to answer the e-mails we receive. Such addresses are not used for any other purpose and are not shared with outside parties. Finally, we never use or share the personally identifiable information provided to us online in ways unrelated to the ones described above without also providing you an opportunity to opt-out or otherwise prohibit such unrelated uses. The only exception is to this rule is our credit card processing module where credit card information as well as name and address must be used for validation.  See Donations and Credit Card Processing below. 


Donations can be made by credit or debit card on our site.  Personal, identifiable information is retained on our system such as name, address, phone number, and zip code. If a donation is made in honor or memory of another person then that person’s name and optionally their address is retained for our records. You do so freely and voluntarily.  Their information is treated as if it were your own. We may also collect information from a visitor through a Registration form for an event sponsored and/or authorized by the Lighthouse Lymphedema Network. 


Credit Card Processing

Credit card information is passed via a secure (https) connection to our credit card gateway, , for validation.  Our online store, which is not yet operational, will additionally collect credit card information.  The information obtained from our visitors in all these cases is used solely by the Lighthouse Lymphedema Network for internal purposes, and it is neither sold to nor shared with a third party except that it is shared only for credit card processing and validation. We do not store the credit card information such as credit card number, CCV codes, expiration dates, etc.

Data Security

Our system and organization is PCI DSS compliant. The official seal is displayed on our credit card processing page in which you may verify our authenticity. For more information about these surety measures visit .

Non-Identifying Information

We do collect non-identifying and aggregate information such as hits per page to better design our website.  At present, we have no advertisers.  In the future should we acquire advertisers, they may be provided such non-identifying information but they will never be able to identify you personally.


Links to other Documents, Websites, or Literature

This website contains links to other websites, online literature, or material that are not under our control.  Some of this literature may have been obtained from a Municipality (City or County), State, or U.S. Government entity. We provide those links or documents for our visitors to examine for their own use.  Our visitors are cautioned to draw their own inferences and conclusions.  The Lighthouse Lymphedema Network is not responsible for the content of any linked website or linked literature, or any link(s) contained in a linked Website, or any changes or updates to such websites. The inclusion of any link on this site does not imply endorsement by the Lighthouse Lymphedema Network of that website. We carefully examine each website and link to be sure the content is applicable to our mission of education. However, we cannot be held responsible if that content is inaccurate or if it changes over time. We do review these links from time to time and will remove such links when they are no longer applicable to our website and to our mission.

Webmaster Contact


Please direct any questions about our privacy policy or the use of information collected on this site by email to the webmaster using our Contact Us form . If you need a reply, be sure to include an email address, or if you don't have one, include some other way we can contact you in the body of your message. If you do not provide sufficient information for us to contact you, then your request will be filed as unanswerable. 

DISCLAIMER: The information on this website has been written for educational and informative purposes only. It cannot be used for diagnosing or treating a health problem or a disease. If you have or suspect you may have a health problem, you should consult your doctor. No responsibility can be accepted for information on any linked page. Please read the provider's own disclaimer where appropriate. Inclusion in this website in no way implies endorsement for particular organizations or linked websites or material.