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Our Mission

The Lighthouse Lymphedema Network is a non-profit IRS Section 501(C)(3) organization of individuals who are lymphedema patients, or who have an interest in lymphedema. Our goal is to educate, promote awareness, and provide support for lymphedema patients, the medical community, family and caregivers, insurance companies, the general public, and lymphedema support groups. 

LLN Bandages and Garment Fund

As we go into the New Year 2021, we are heading into our last quarter of our grant money from It’s The Journey. Because of the slow year we had in 2020 due to the COVID pandemic, the second half of our grant money was just recently awarded. We look forward to any and all qualifying grant applications so that we can fill the need for compression garments for indigent lymphedema patients. We have had a few successful fund raisers for the non-breast cancer patients and generous gifts from our garment providers. As always, we thank our DMEs for all the monetary and garment gifts that they provide to the needy patients. Rebecca Hammad, MHS, OTR/L continues to serve all non-breast cancer patients. We look forward to working with the therapists, DMEs, and garment companies this coming year to provide much-needed compression garments.

Our LLN History

In 1993, the Lighthouse Lymphedema Network held its first meeting in the home of its founder, Joan White.  Those present included patients, family members, one occupational therapist, and one massage therapist.  The occupational therapist and massage therapist would go on to get their certifications in treatment of lymphedema patients.

From the beginning, the group was focused on education and creating awareness.  We were definitely "pioneers."  In 1993, the internet was still in its infancy compared to today's standards. Therefore, getting information to the public about lymphedema was met by challenges.  Word of mouth and constant determination has made the LLN one of the most respected and ongoing lymphedema support groups in the country.

The LLN has a strong Board of Directors, which meets quarterly and administers the many projects of the organization.

 

  • Education & Awareness Programs: Over the years, with the help of various businesses and lymphedema product companies, the LLN has sponsored programs on lymphedema and other lymphatic diseases.  We are proud of our efforts in our "Shedding Light on Lymphedema" programs and our many State of Georgia Lymphedema Education & Awareness events.

  • Through the efforts of the LLN, October 22nd has been declared the State of Georgia Lymphedema Awareness Day.  This day has been celebrated with distinguished speakers presenting on various topics from the correct treatment of lymphedema to current research.  We especially thank the physicians, certified therapists, and technicians who have shared their time and talents over the years to make our education and awareness programs among of the best in the country.
  • The LLN sponsors various events and an annual conference throughout the year and invites speakers to discuss subjects of interest for our patients, family members, and the professional community.
  • The LLN publishes quarterly newsletters, provides information brochures, and participates in many health fairs throughout the year.
  • Website: Information on the LLN and about lymphedema is available.  We also providedirect links to many other sites that we know are trustworthy.
  •  The Bandages and Garment Fund  was started to make sure needy patients whose insurance or Medicare/Medicaid will not cover garments or other devices do not fall through the cracks.  It is extremely important that once affected patients have gone through the treatment program, they have proper compression garments to wear to maintain the affected limb.  Through donations, fund raisers, and grants, the organization has provided assistance to many patients.

The LLN is a group of volunteers (we have no paid staff) whose purpose is to educate and create awareness about lymphedema and to help patients, family members, and professionals.

The LLN welcomes members to become involved in helping us to achieve our goals.

Become Active! Become an Advocate! Become a LLN contributor by serving on one of our many committees! You can make a difference!

 

WHO WE ARE

2018 Board pic

THE LIGHTHOUSE LYMPHEDEMA NETWORK 

The Lighthouse Lymphedema Network, we call ourselves the LLN, is dedicated to educating and creating awareness about lymphedema and related disorders. The LLN annually sponsors a medical conference including patients, caregivers, family members, and medical professionals.

Our Bandages and Garment Fund helps those less fortunate patients in Georgia whose insurance, Medicare or Medicaid will not cover garments or other devices. The LLN publishes a quarterly newsletter. Other materials available include our brochure. Through our website, we hope to provide information both locally and nationally. We have a strong board of directors of 30 volunteers who work tirelessly on various committees, fund raising projects, representing the LLN at health fairs and conferences throughout the year.