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About Us

Welcome to the Lighthouse Lymphedema Network

our focus

Since its founding around a dining room table in 1993, the Lighthouse Lymphedema Network (LLN) has grown to become one of the most recognized, respected and fast-growing non-profit organizations dedicated to promoting education and awareness about this disease we call lymphedema and provide assistance and support, not only for those afflicted with this disease but for their families, friends and even their healthcare providers.

With the launch of our new look and website, we hope those who come here will find the information needed to expand their knowledge and understanding of this disease.

The LLN has many goals and our mission is constantly expanding.

It seems as soon as one project is completed, another slips into its place. The LLN Board of Directors is very dedicated to serving those in the world of lymphatics and lymphatic disorders. We have no paid staff; only patients, medical professionals and community volunteers who donate their time and energy to keep our wonderful organization moving in a positive direction. When asked how best to serve the LLN, I always say, "Attend our events, become a spokesperson for lymphedema and volunteer". Bring us your concerns and we will help you! Bring us your ideas and we will work to make them happen! In the end, HELP US! HELP OTHERS!

Joan White,

Director

Our Mission

The Lighthouse Lymphedema Network is a 501 (C) (3) organization of individuals who are lymphedema patients, or who have an interest in lymphedema. Our goal is to educate, promote awareness, and provide support for lymphedema patients, the medical community, family and caregivers, insurance companies, the general public, and lymphedema support groups. 

What we Do

Lymphedema Education & Support

The 2020 Fall Conference was a Virtual success

We hope everyone is starting the New Year safe and well.  We would like to thank everyone who supports our efforts to bring education and create awareness of lymphatic disease.  Our annual conference is always the highlight of the year for all involved.  We enjoy bringing the community together, and bringing world renowned speakers to help us educate patients, therapists, physicians and others on this disease, at this time of year. 

In 2020, through the pandemic, our support group was dedicated to promoting health and wellness, and as such we prioritized the health and safety of our community and the presenters, by making the conference completely virtual. This was a brand new endeavor for us, but we were confident everyone would have an extraordinary virtual experience.  We were very hopeful to be able to see a vaccine and things getting back to normal, but that did not happen in time for the conference.  We wanted everyone to be safe and well, as many of our community are medically fragile and our community is our first priority. 

The Virtual conference was a tremendous success!!  Hopefully the 2021 Conference will be held in person, and everyone will be able to attend, as we know it will be a great educational experience for all. 

However, in the meantime we are making plans to do several webinars during the year to keep you abreast of subjects related to the treatment and care of lymphedema. Stay tuned for the exciting details of these webinars.

Get Started Today.

Help Us Help Others

FACES OF LYMPEHDEMA

Thank you !!!

Click on the Play button to view Sigvaris’ Faces of Lymphedema video.  This video was produced by Sigvaris, Inc. a compression garment manufacturer located in Peachtree City.  Their video was made to highlight the Faces of Lymphedema. 

Latest Stories

Recent News from LLN

We sincerely thank Brandon Dixon, PhD, Associate Professor and Woodruff Faculty Fellow, George W. Woodruff School of Mechanical Engineering, Parker H. Petit Institute for BioEngineering and BioScience, Georgia Institute of Technology and his grad students for hosting an extremely informative program on the research being done on lymphatic disease.

Alexandra Ataalis, Febrice Bernard, Matthew Cribb, Yarelis Gonzalez-Vargas, Yanina Kuzminich, Lauren Libman, Ria Michalaki, Anish Mukherjee, Likhit Nayak, Zhanna Zeplyushchikn, Lauren Sedtito, Kim To, Ki Taw Wolf

Lymphedema Treatment Act

The Lymphedema Treatment Act is a federal bill that will improve insurance coverage for the medically necessary, doctor-prescribed compression supplies that are the cornerstone of lymphedema treatment.

To learn more about this legislation and the ways in which you can support its passage, please visit lymphedematreatmentact.org.  This is a patient-driven, grassroots effort and our success depends on people just like you getting involved.

Lymphedema : A Patient's story

We will feature patient’s stories in this section.  If you would like to present a story please fill out a Contact card and we will contact you to obtain your story.

This month we are featuring Sharon Shepard. 

Sharon was diagnosed with bilateral early-stage breast cancer in 2017, requiring  removal of five sentinel lymph nodes to check them for cancer.  She was provided a lymphedema awareness seminar after surgery and knew that Lymphedema could show up years, or decades after damage to the lymphatic system.  In 2018 a mosquito bite launched her lymphedema due to an allergic reaction. 
 
Read the complete story…

Georgia Gives Day

We would like thank all who gave to the LLN through Georgia Gives Day.  Although the annual Georgia Gives Day is in November of every year, you can give here on our website directly.  We appreciate everyone’s support of the Lighthouse Lymphedema Network. 

When Joan White was diagnosed with Lymphedema back in the 1980’s, she had no one to turn to for help.  She was faced with a debilitating illness that was progressively worsening, and there were no medical professionals available who could offer any assistance. 

Out of Joan’s personal struggle was born The Lighthouse Lymphedema Network.  She founded this nonprofit organization in 1993 with the mission to increase awareness and general knowledge of the condition known as Lymphedema so that others would not have to battle as she did to find assistance.  Since this time, through the tireless efforts of volunteers, the LLN has continued to grow and gain recognition while educating and assisting patients, families, caregivers, the medical community, insurance companies, and other Lymphedema support groups.

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